Networking Experts, Centers of Expertise and Patient Organizations to Strengthen Health Systems for Rare Diseases

This event aims to explore how national healthcare systems can be strengthened to better support Persons Living with a Rare Disease (PLWRD) and help achieve existing international commitments. Participants will discuss how networking experts, centers of expertise, and patient organizations can help foster national and global “health systems strengthening”. The event will present proposals for strengthening healthcare systems for PLWRD, with an in-depth look at the creation of a Global Rare Diseases Network.

This event will take place 6:30 p.m. to 8:30 p.m. CEST on May 24, 2022.